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How Gluten Free Food Changed My Cerebral Palsy Teenager
Realizing that my daughter had a gluten allergy was both a relief and a challenge. The relief? Yes, was this part of her stomach pains all along? So, how do I replace her favorite foods with gluten, and where do I find gluten-free food?
Medically diagnosed with cerebral palsy since birth, in addition to symptoms of ADHD and autism, Amber is a beautiful, bright, lively, 16-year-old girl with deep, soul reaching brown eyes, a great sense of humor and a smile that just touches your heart. She cannot speak our language or walk and is very dependent on the love and support of her mum and dad, supporters and teaching assistants to help her experience everything possible in our world.
Her favorite band is Hi 5 and every morning she loves to watch them before breakfast and since he is gluten free she quietly watches Titanic while gently holding her favorite sock puppet “Mouseskee” before drifting off to sleep at night. She sleeps on a special mattress and has a sleep system made up of eight pillows placed deliberately around her body supporting her back, front and legs. During the night you have to turn her at least five times and I will tell you that the skill of doing this without waking her has definitely become an art through practice over the years.
She has been through some major surgeries and is very limited in what she can do physically, but absolutely enjoys walking around in her wheelchair, exploring anything and everything around her with her tongue and hands. Stories and songs are a must at least once a day, as is a cuddle and as for her “Daddy” well he just loves to make her happy, you will see the excitement and anticipation in her eyes whenever she hears his voice and the noise well it. just fills the house with love and laughter. She is the youngest of four and absolutely adored by her older brother and two sisters who are making their own way in the big wide world.
Since birth Amber has always had problems with sleeping, among other things so sleep in our household is a luxury, but we knew that something was going on with her body especially with her stomach and put a lot into her condition and medications she would take. then. Since trying the gluten free diet there has been a huge difference in her behavior, attitude and sleep patterns. We are now getting a decent night’s sleep, she is much happier, energetic and very alert all made possible by switching to a gluten free lifestyle.
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